Rare Disease Day in Frankfort KentuckyPublished on February 27, 2017Rare Disease DayThank you to Pat and Jennifer and NORD for having this event. I am honored to be hereMarinesco Sjogren's syndrome disorder, consist of cataracts, mental retardation ataxia, cognitive delay and very small in stature. It is a genetic disorder and is hereditary. the SIL1 … Continue reading Robin Rider Osborne is an Activist and Advocate for seriously disabled children ….
