Robin Rider Osborne is an Activist and Advocate for seriously disabled children ….

Rare Disease Day in Frankfort KentuckyPublished on February 27, 2017Rare Disease DayThank you to Pat and Jennifer and NORD for having this event. I am honored to be hereMarinesco Sjogren's syndrome disorder, consist of cataracts, mental retardation ataxia, cognitive delay and very small in stature. It is a genetic disorder and is hereditary. the SIL1 … Continue reading Robin Rider Osborne is an Activist and Advocate for seriously disabled children ….